據(jù)報(bào)道,一名名叫米薩爾·卡爾多尼·奧阿布魯?shù)哪泻⒂捎诨忌狭艘环N無(wú)法停止進(jìn)食的綜合征,體形是同齡兒童的三倍。
He is so heavy he often stops breathing whilesleeping - leaving his terrified parents fearing thatone day he may not wake up.
由于太重,他睡覺(jué)時(shí)經(jīng)常會(huì)停止呼吸。他父母嚇壞了,總擔(dān)心有一天他會(huì)醒不過(guò)來(lái)。
Doting dad Manoel Abreu, 38, said: "Everything ishard for him - he is a baby carrying an adult's weight. His heart must be suffocated andworking under a lot of pressure. If he doesn't get the treatment he requires there is a verygood chance he will pass away."
38歲的父親曼諾爾·阿布魯非常溺愛(ài)兒子,他說(shuō):“對(duì)他來(lái)說(shuō)所有事情都非常艱難。他是個(gè)承載著成人體重的嬰兒。他的心臟一定備受壓迫,承受很大壓力。如果不能得到應(yīng)有的治療,他很可能會(huì)過(guò)世。”
Misael, from Espirito Santo, Brazil, was born a healthy 6lb 6oz, but immediately started pilingon the pounds. Doctors believe he may be suffering from Prader-Willi syndrome, a raregenetic condition that leaves him with an insatiable appetite.
米薩爾來(lái)自巴西圣埃斯皮里圖州,出生時(shí)非常健康,體重6磅6盎司,但隨后開(kāi)始迅速發(fā)胖。醫(yī)生認(rèn)為他可能患了普瑞德威利癥候群。這種罕見(jiàn)的疾病使得他無(wú)法控制自己的胃口。
He now weighs a hefty 178lb and is still gaining despite following a low-fat diet and walking for40 minutes each day.
目前他重達(dá)178磅,盡管他每天堅(jiān)持低熱飲食并散40分鐘的步,他的體重仍然在繼續(xù)飆升。
Mum, Josiane de Jesus Caldogno Abreu, 37, said: "He has been putting on a lot of weight sincehe was a baby - even when I was breastfeeding him it was more than expected. But it was onlywhen he was one and a half years old that we began to worry. He was gaining 3kg (6.6lb) amonth and was starting to get very heavy."
37歲的母親喬西安·杰西·卡爾多尼奧·阿布魯說(shuō):“從他還是個(gè)嬰兒時(shí)就一直在長(zhǎng)肉。即使在我給他哺乳期間,他體重的增長(zhǎng)仍然超乎預(yù)期。但直到他一歲半時(shí)我們才開(kāi)始擔(dān)心。他每月增重3kg(6.6磅),開(kāi)始變得越來(lái)越重。”
"His situation is complicated. We know we could lose him at anytime. Sometimes when he issleeping I watch him to see if he is breathing. I cry a lot because we want to help him. But I amalso very proud of him because he is a child who doesn't surrender."
“他的情況很復(fù)雜,我們都清楚隨時(shí)可能失去他。有時(shí)候,我會(huì)在他睡覺(jué)時(shí)看他是否仍在呼吸。我們時(shí)常以淚洗面,因?yàn)橄胍獛椭5瑫r(shí)我們也為他感到驕傲,因?yàn)樗莻€(gè)永不屈服的孩子。”
Misael visits a doctor every three months to try and control his condition but currently there isno cure for Prader-Willi syndrome.
米薩爾每三個(gè)月要去看一次醫(yī)生,努力控制病情,但目前還沒(méi)有普瑞德威利癥候群的治療方法。
Paediatric neurologist Lucio Coelho Miranda said: "Every appointment we have had he has puton a lot of weight - sometimes up to 5kg (11lb). I think Misael could get help from someoneoutside of Brazil - both medically and financially - so he can get the laboratory and genetictesting he needs."
兒科神經(jīng)學(xué)家露西婭科埃略米蘭達(dá)說(shuō):“每次會(huì)診他都會(huì)長(zhǎng)很多斤。有時(shí)會(huì)長(zhǎng)5kg(11磅)。我覺(jué)得米薩爾能夠從國(guó)外專家那里得到包括醫(yī)學(xué)和經(jīng)濟(jì)上的幫助。這樣他就能得到他需要的實(shí)驗(yàn)室測(cè)試和基因檢測(cè)。”
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